Seeley Swan Pathfinder -

SEATTLE, WASH. - "I had never, at any point in my medical training, sat in a room where at the same time you tell a patient they have a diagnosis, you also tell them they will definitively die from that diagnosis."

This was Dr. Nicholas Vitanza's memory of meeting his first patient with Diffuse Intrinsic Pontine Glioma (DIPG), an inoperable brain tumor found in children. As a pediatric neuro-oncologist at Seattle's Children's Hospital, he has since delivered the same message to many more patients diagnosed with DIPG.

Now, one of his current patients, Addy Trevino from Seeley Lake, Mont., o...